Our Beginning
PCOS Awareness Association was created out of lived experience.
Like so many others, our founder navigated the confusion, delays, and emotional toll that often accompany a PCOS diagnosis. What began as a personal journey quickly revealed a much larger issue—a widespread lack of awareness, consistent education, and accessible resources for PCOS.
The organization was built not just to raise awareness, but to ensure that awareness leads to understanding, action, and support.
Our Mission
PCOS Awareness Association is dedicated to educating, supporting, and advocating for individuals impacted by PCOS, while working to improve understanding of PCOS within the healthcare system and the broader community.
We believe people with PCOS deserve:
To be believed
To be informed
To be supported
To have access to care that reflects the complexity of the condition
Centering the PCOS Community
PCOS does not affect one group in one way. Symptoms, access to care, and lived experiences vary widely across race, age, geography, and socioeconomic status.
PCOS Awareness Association is committed to:
Inclusive representation
Health equity
Culturally responsive education
Addressing disparities in diagnosis and care
Community voices are central to everything we do.
A Growing Movement
What began as one voice has grown into a global community of individuals, families, advocates, healthcare professionals, and partners united by a shared goal: to improve the lives of those impacted by PCOS.
Every story shared, every conversation started, and every resource created brings us closer to a future where PCOS is recognized, understood, and treated with the seriousness it deserves.
About PCOS Awareness Association
The PCOS Awareness Association (PCOSAA) was founded to change the narrative around Polycystic Ovary Syndrome—how it is understood, diagnosed, and supported.
PCOS is one of the most common hormonal and metabolic conditions in the world, yet millions of people spend years searching for answers, often feeling dismissed, misunderstood, or alone. PCOSAA exists to close that gap through education, advocacy, and community.
Why PCOS Awareness Matters
Despite how common PCOS is, it remains under-recognized in both public conversation and clinical practice. Many individuals wait years for a diagnosis. Others receive fragmented information that focuses on isolated symptoms rather than the whole person.
PCOS awareness is not simply about visibility—it is about:
Reducing diagnostic delays
Improving quality of care
Addressing physical, mental, and emotional health
Ensuring equitable access to informed providers
Supporting individuals across the lifespan
Awareness changes outcomes.
What We Do
PCOSAA operates at the intersection of education, advocacy, and community support.
Our work includes:
Providing evidence-informed PCOS education
Creating accessible resources for individuals, families, and allies
Amplifying lived experiences through storytelling initiatives
Supporting advocacy efforts that address systemic gaps in care
Building programs that meet people where they are—across age, culture, and life stage
Our approach is holistic, inclusive, and grounded in real-world needs.
Beyond Awareness
PCOSAA is focused on meaningful impact, not performative awareness.
We work to:
Transform awareness into education
Turn education into advocacy
Translate advocacy into better outcomes
Our programs are designed to support individuals at every stage—from those seeking answers to those advocating for systemic change.
Our Vision
We envision a world where:
PCOS is diagnosed earlier
Care is informed and compassionate
Individuals feel empowered, not dismissed
No one faces PCOS alone
Together, we are changing the PCOS story.